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Psalm 63:4

Thus will I bless thee while I live: I will lift up my hands in thy name.

Photo credits: Lindsay McIntire & the Best.Party.Ever
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Two Days and Counting…

Theo2ndlastday

Monday, January 1, 2018

While a minor bump in the road had us celebrating the New Year at CHOP early this morning (fever protocol), we are on schedule to crush our last pill tomorrow night…

Happy New Year

Psalm 27:14

14 Wait for the Lord;
be strong and take heart
and wait for the Lord.

 

Last IV Chemo

Friday, December 22, 2017

Oh my, today was Theo’s last appointment for IV chemo.  Eleven more days of pills and he will have completed his treatment.  Three years and three months.  It was an emotional day.

Thank you Lord God Almighty for seeing us through to the end.

Merry Christmas

Isaiah 9:6

For to us a child is born,
    to us a son is given,
    and the government will be on his shoulders.
And he will be called
    Wonderful Counselor, Mighty God,
    Everlasting Father, Prince of Peace.

Last IV Chemo

Prayers & Celebration

Today is Theo’s LAST spinal tap!  Please pray with us for safety and peace of mind for Theo and a steady hand for the doctor, and then please celebrate with us as Lord willing we will never have to do this again!

Many Blessings

Psalm 107:1

“Give thanks to the Lord for He is good, His loves endures forever.”

 

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New Spectacles

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Friday, September 8, 2017

Theo failed his eye exam this past month at the pediatrician.  It turns out he has an astigmatism in his left eye.  He now has glasses and we’re patching the good eye a little each day.

As cute as he looks in his glasses, I think Scott and I are a little discouraged.  You would think this would be a small spec compared to all we’ve been through, but, especially after the Lyme’s and now this, we find ourselves asking, “Why Theo, Lord?  Can’t you just leave him alone for a little while?”

Would you please pray that Theo isn’t discouraged by this?  He’s been so resilient thus far, I’m sure it’s because you are praying for him.  If you would also pray against weariness in our parent hearts, that we would continue to rejoice in all the God has done in our family, and that we would trust that God loves Theo and has a great plan for his life, we would be grateful.

Praying for Texas,

and stay safe dear Floridians!

Psalm 139

13 For You made the parts inside me. You put me together inside my mother. 14 I will give thanks to You, for the greatness of the way I was made brings fear. Your works are great and my soul knows it very well. 15 My bones were not hidden from You when I was made in secret and put together with care in the deep part of the earth. 16 Your eyes saw me before I was put together. And all the days of my life were written in Your book before any of them came to be.

Spinal Tap Prayer

August 4, 2017

Today is Theo’s second-to-last spinal tap.  Will you please pray for him?  Please pray for peace of mind, safety, comfort and a steady hand for the doctor.

Thank you kindly

1 John 4:18

There is no fear in love.  But perfect love drives out fear.

Hills and Valleys

July 23, 2017

I am well aware of my age.  I am well aware of all that my body has been through during the last 15 years of motherhood.  I am well aware of the statistics of increased instance of Down Syndrome and other chromosomal differences in children born to women 40 and older.  But at this point in my life, I can’t imagine looking into the face of God Almighty and saying, “No thank you.  No, we don’t want any more children, but thanks.”  And so, Scott and I, hand in hand, live on into our forties.

Living with teenage daughters is awesome.  Some things are a little tricky though, like sneaking pregnancy tests into the house.  So it’s quite a rush when I hide my box, wait for a quiet moment, and discover what I already know to be true.  Back in April was such a night, and with my positive test hidden under my old t-shirts, I was racking my brain on how to tell Scott.  It’s one of my favorite moments.  I could recount for you every. single. time. I’ve told Scott that I was expecting.  But at this point it was midnight, Troy was asleep on my chest, and I was waiting for Scott to come to bed.  I had the biggest smile on my face, but I was trying to hide my news until the morning when I could be more creative.  Scott climbed into bed, rolled over and said, “Are you alright?”

Forget creative.  With the moonlight shining in our window, Troy’s heart beating against mine, I whispered, “I’m pregnant!”

With a big smile Scott simply said, “Congratulations.”

A baby is a gift in any form for any amount of time.  Just knowing we were expecting was an exciting joy all on its own.  We had decided to announce after our first ultrasound, so I did my best to suck it in and act normal (ha).

Several weeks went by and the day of my ultrasound had arrived.  Before I left for my ultrasound, I sat in my prayer closet to pray for me, our baby and my doctor.  Strangely, I prayed, “Please give me courage.”

I’ll be honest, sometimes I hate my prayer closet.  Sometimes it freaks me out. I didn’t quite know at that moment, but I drove all the way to the doctor’s thinking, “Why would I need courage?”

The scriptures tell us the Holy Spirit prays on our behalf.  Romans 8:26

It’s always fun to walk into my OBGYN’s office.   I’ve been friends with this staff for 10 years.  It’s almost like Norm walking into the Cheers bar (but not).  I was excited to see everyone and excited to boast of our new baby.  But back in the exam room as I talked with my doctor I couldn’t quite shake my dark thoughts.  We settled in to see the ultrasound monitor and I was the first to say it out loud.

“There’s no heartbeat.”

Silence.

The doctor scrambled and pushed some buttons.  He turned on the sound waves at the bottom of the screen.

“There’s no sound waves.  Are there any sound waves?”

Would someone please say something?

He confirmed, “No, I am so sorry, there aren’t any sound waves.”

The three of us just sat there, the doctor, the nurse and I, staring at my still little baby.  It felt like an eternity of silence.  He was so peaceful, but not in a good way.  I started crying.  Crying and crying and crying.

I am so grateful for all that God has given me.  I love my husband, I love our kids, I love our home.  It’s not that I need anything or anyone more.  It’s just that at this point in life I can’t bring myself to say, “No thank you.”

I lost a baby that week.  We lost a baby that week.

Scott and I continue to trust the Lord with our health, our minds, our family and our finances.  We will wait and see what His will is for our future.  Until then, there’s plenty around here to keep us busy.

Matthew 18

 5And whoever welcomes one such child in my name welcomes me.

Hills and Valleys by Tauren Wells