April 7, 2018
We are so excited to share …
We are expecting a new baby boy …
He is due September 30, 2018 …
3 Children are a heritage from the Lord,
offspring a reward from him.
4 Like arrows in the hands of a warrior
are children born in one’s youth.
5 Blessed is the man
whose quiver is full of them.
Tuesday February 27, 2018
Theo’s surgery went really well; thank you so much for praying!
There were many blessings that day: Theo was first on the surgery list, Dr. D and his nursing staff were great, and Anne came and talked to us while we waited. Anne was a mom and a sister in Christ who was also waiting for her son in the Parent Waiting Room. I was extra thankful for her boldness and chatty nature because she helped the time pass quickly. We were home by 11am and yes, eating Doritos by dinner time.
Tomorrow we go for an EKG, echocardiogram, bloodwork, and an exam. One of Theo’s chemos is known to cause heart damage so this is part of the after-care routine. Honestly we’re just so glad the kid is alive, so don’t spend too much time worrying about the damage.
We’ll visit monthly for two more years for blood work and a physical exam, and every now and then they’ll throw in an extra test. Theo is dreading the arm stick, but that’s not until June.
That’s all that’s new around here. Our new normal is nice. Real nice.
1 The Lord is my shepherd, I lack nothing.
2 He makes me lie down in green pastures,
he leads me beside quiet waters,
3 he refreshes my soul.
He guides me along the right paths
for his name’s sake.
4 Even though I walk
through the darkest valley,[a]
I will fear no evil,
for you are with me;
your rod and your staff,
they comfort me.
5 You prepare a table before me
in the presence of my enemies.
You anoint my head with oil;
my cup overflows.
6 Surely your goodness and love will follow me
all the days of my life,
and I will dwell in the house of the Lord
Thursday February 8, 2018
This is it. This is the final step in closing out our cancer days.
Theo is scheduled to have his port removed tomorrow at CHOP. Out of the 3 risk factors, he only has one, which is that the port has been inside his chest for longer than 2 years. Ideally the port and it’s wire will slide out of his artery with relative ease. Dr. D says he’ll have the cardiac team in the room in case there’s excessive scaring making it hard to remove. He says they have a plan if that happens, but I didn’t ask and he didn’t tell.
The anesthesiology team called yesterday to go over the final details. I was crying on the other end and hoping the woman didn’t notice. We have fought so hard for this kid, I just don’t know if I can hand him over one more time.
Will you please pray for Theo tomorrow? Will you please pray that this port comes out with such great ease that everyone in the room breathes a sigh of relief? Please pray for Dr. D and our witness as we meet with him. This is our third surgery with him so it’s been fun to develop a relationship along the way. Please pray that the Lord would give us comfort as we watch them roll Theo out of the room one last time. Please pray that we’re eating Doritos together by dinnertime.
Thank you dear friends
but those who hope in the Lord
will renew their strength.
They will soar on wings like eagles;
they will run and not grow weary,
they will walk and not be faint.
Monday, January 1, 2018
While a minor bump in the road had us celebrating the New Year at CHOP early this morning (fever protocol), we are on schedule to crush our last pill tomorrow night…
Happy New Year
14 Wait for the Lord;
be strong and take heart
and wait for the Lord.
Friday, December 22, 2017
Oh my, today was Theo’s last appointment for IV chemo. Eleven more days of pills and he will have completed his treatment. Three years and three months. It was an emotional day.
Thank you Lord God Almighty for seeing us through to the end.
6 For to us a child is born,
to us a son is given,
and the government will be on his shoulders.
And he will be called
Wonderful Counselor, Mighty God,
Everlasting Father, Prince of Peace.
Today is Theo’s LAST spinal tap! Please pray with us for safety and peace of mind for Theo and a steady hand for the doctor, and then please celebrate with us as Lord willing we will never have to do this again!
“Give thanks to the Lord for He is good, His loves endures forever.”