Theo’s last phase of chemotherapy is called Maintenance. The wonderful thing about this phase is that it only requires us to go to CHOP once a month for IV chemo and every three months for a spinal tap. This phase will last until January 2, 2018.
Theo kicked off Day 1 of Maintenance this morning with a spinal tap and Vincristine. Tonight we will begin a home regimen of antibiotics, steroids and Methotrexate. Friends have told us that this last phase is much easier and we are beyond excited to have made it this far.
The doctor did express concern today over Theo’s weight. He is down 3 pounds compared to June. As a mom I could tell you all the reasons that a slight weight loss seems reasonable, but the fact is Theo needs to gain weight and he has one month to prove himself. Many of the patients we have met have a NG tube that runs from their nose to their stomach. It is our prayer that Theo would be able to avoid this completely. Will you please pray with us that Theo eats and gains weight? Our next visit is August 7 for a weight check and chemo.
Until then, I am excited to say we can stay home for the next 28 days…
“Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more than food, and the body more than clothes? Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? Can any one of you by worrying add a single hour to your life?
“And why do you worry about clothes? See how the lilies of the field grow. They do not labor or spin. Yet I tell you that not even Solomon in all his splendor was dressed like one of these. If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you—you of little faith? So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ For the pagans run after all these things, and your heavenly Father knows that you need them. But seek first his kingdom and his righteousness, and all these things will be given to you as well.