December 21, 2015
After twenty days off of medicine he did it. Or shall I say He did it. Theo’s counts are all back to a healthy level including a hemoglobin of 10. Theo’s hemoglobin had been at 7 for three weeks straight. The doctors held off from transfusing him hoping his body would feel the pressure and kick up production. During that middle week I would look at the dark circles around his eyes or watch him lay on the couch and wonder if I should have been doing more for him. It was driving me crazy.
In addition to a stellar blood count report this past Friday our lead doctor decided to postpone Theo’s spinal tap. She said let’s resume home meds at 50% for two weeks and schedule the spinal tap for New Year’s Eve instead of Christmas Eve. I was speechless, honestly. This meant the kids and I could go to church with Scott on Christmas Eve. I thought my heart was going to burst.
Christmas came early for me this year knowing that our son was bouncing back and anticipating Christmas Eve together as a family.
As you finish up your planning, grocery shopping, baking, cleaning and wrapping, I pray that our Lord would reveal His Son to you in a wonderfully personal and relevant way.
Merry Christmas 2015
18 This is how the birth of Jesus the Messiah came about: His mother Mary was pledged to be married to Joseph, but before they came together, she was found to be pregnant through the Holy Spirit. 19 Because Joseph her husband was faithful to the law, and yet did not want to expose her to public disgrace, he had in mind to divorce her quietly.
20 But after he had considered this, an angel of the Lord appeared to him in a dream and said, “Joseph son of David, do not be afraid to take Mary home as your wife, because what is conceived in her is from the Holy Spirit. 21 She will give birth to a son, and you are to give him the name Jesus, because he will save his people from their sins.”
22 All this took place to fulfill what the Lord had said through the prophet: 23 “The virgin will conceive and give birth to a son, and they will call him Immanuel”(which means “God with us”).
December 21, 2015
Last Monday Scott and I went off to our ultrasound date night. It’s one of our favorite traditions, being our 8th time around. This time we were both able to spy our baby’s gender before our technician gave the official word … it’s a boy. We are over the moon. Five sons.
It might be a little bit more noisy, I will for sure see more flying objects out of the corner of my eye and perhaps we will need to squeeze in a few additional trips to the ER, but let’s be honest, boys are much easier.
*super cute custom sign made by Whimsically Chic Boutique*
My son, pay attention to what I say;
turn your ear to my words.
21 Do not let them out of your sight,
keep them within your heart;
22 for they are life to those who find them
and health to one’s whole body.
23 Above all else, guard your heart,
for everything you do flows from it.
The father of a righteous child has great joy;
a man who fathers a wise son rejoices in him.
25 May your father and mother rejoice;
may she who gave you birth be joyful!
December 7, 2015
We spent both Monday and Wednesday of last week at CHOP giving blood and waiting for the results. Our greatest relief came on Monday when they discovered that Theo’s hemoglobin had stabilized on its own over the weekend – Praise God. It was still very low but not low enough to require a transfusion. They decided to stop all meds and asked us to come back on Wednesday. Wednesday’s results showed a still-stable hemoglobin but everything else had continued to drop. They concluded that there was no underlying problem but instead shifted the blame to the medicine dose. What a relief. We had left the office on the previous Friday thinking there was something wrong with Theo, and man what a burden that had been on both of us. This cancer stuff is not easy.
Today marks one week off of all meds and our son is a different kid. He played outside for hours yesterday without taking a nap and has honestly eaten everything in the pantry. It’s kind sad to think that he has to go back on the medicine at some point, but it’s also really encouraging to see a vision of who he will be once he finishes this treatment.
We return to CHOP again this week to check on Theo’s counts. The plan is once all of Theo’s counts return to a safe level they will resume him at 50% of his current dose. If he handles that well they will bump him up to 75% of his current dose. It is possible that he will finish out the next two years at only 75%. This is the second time that he’s bottomed out in 4 months, and they seem committed to making sure he doesn’t bottom out again.
We know Theo needs the chemo to kill his cancer, but it sure is fun to watch him off of chemo. I would ask that you pray that CHOP would give him the perfect amount of medicine. Too little and the cancer could come back some day, too much and he will continue to bottom out.
I can’t tell you how much it means to Scott and I that you are reading along with us. Your support and comments are a great source of encouragement.
This was our morning family devotion…
2 Corinthians 12:9 & 10
9 But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. 10 That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.