Thursday February 8, 2018
This is it. This is the final step in closing out our cancer days.
Theo is scheduled to have his port removed tomorrow at CHOP. Out of the 3 risk factors, he only has one, which is that the port has been inside his chest for longer than 2 years. Ideally the port and it’s wire will slide out of his artery with relative ease. Dr. D says he’ll have the cardiac team in the room in case there’s excessive scaring making it hard to remove. He says they have a plan if that happens, but I didn’t ask and he didn’t tell.
The anesthesiology team called yesterday to go over the final details. I was crying on the other end and hoping the woman didn’t notice. We have fought so hard for this kid, I just don’t know if I can hand him over one more time.
Will you please pray for Theo tomorrow? Will you please pray that this port comes out with such great ease that everyone in the room breathes a sigh of relief? Please pray for Dr. D and our witness as we meet with him. This is our third surgery with him so it’s been fun to develop a relationship along the way. Please pray that the Lord would give us comfort as we watch them roll Theo out of the room one last time. Please pray that we’re eating Doritos together by dinnertime.
Thank you dear friends
but those who hope in the Lord
will renew their strength.
They will soar on wings like eagles;
they will run and not grow weary,
they will walk and not be faint.
Monday, January 1, 2018
While a minor bump in the road had us celebrating the New Year at CHOP early this morning (fever protocol), we are on schedule to crush our last pill tomorrow night…
Happy New Year
14 Wait for the Lord;
be strong and take heart
and wait for the Lord.
Friday, December 22, 2017
Oh my, today was Theo’s last appointment for IV chemo. Eleven more days of pills and he will have completed his treatment. Three years and three months. It was an emotional day.
Thank you Lord God Almighty for seeing us through to the end.
6 For to us a child is born,
to us a son is given,
and the government will be on his shoulders.
And he will be called
Wonderful Counselor, Mighty God,
Everlasting Father, Prince of Peace.
Today is Theo’s LAST spinal tap! Please pray with us for safety and peace of mind for Theo and a steady hand for the doctor, and then please celebrate with us as Lord willing we will never have to do this again!
“Give thanks to the Lord for He is good, His loves endures forever.”
Friday, September 8, 2017
Theo failed his eye exam this past month at the pediatrician. It turns out he has an astigmatism in his left eye. He now has glasses and we’re patching the good eye a little each day.
As cute as he looks in his glasses, I think Scott and I are a little discouraged. You would think this would be a small spec compared to all we’ve been through, but, especially after the Lyme’s and now this, we find ourselves asking, “Why Theo, Lord? Can’t you just leave him alone for a little while?”
Would you please pray that Theo isn’t discouraged by this? He’s been so resilient thus far, I’m sure it’s because you are praying for him. If you would also pray against weariness in our parent hearts, that we would continue to rejoice in all the God has done in our family, and that we would trust that God loves Theo and has a great plan for his life, we would be grateful.
Praying for Texas,
and stay safe dear Floridians!
13 For You made the parts inside me. You put me together inside my mother. 14 I will give thanks to You, for the greatness of the way I was made brings fear. Your works are great and my soul knows it very well. 15 My bones were not hidden from You when I was made in secret and put together with care in the deep part of the earth. 16 Your eyes saw me before I was put together. And all the days of my life were written in Your book before any of them came to be.
August 4, 2017
Today is Theo’s second-to-last spinal tap. Will you please pray for him? Please pray for peace of mind, safety, comfort and a steady hand for the doctor.
Thank you kindly
1 John 4:18
There is no fear in love. But perfect love drives out fear.